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ARTICLES

ABSORPTION OF STEROIDS - WHAT HAPPENS IN THE GUT! By Dr John W Honour

Dr John Honour who is a biochemist and very well known for his work and research in the metabolism of steroids, has kindly written up his very well received, interesting and revealing talk at our CAHISUS meeting held in June 2017.

To read the article click on the link below:

Absorption of Steroids - what happens in the gut! By Dr John W Honour


SUMMARY TRANSCRIPT OF THE MEETING WORKING TOWARDS A SINGLE GOLD STANDARD CARE PROTOCOL FOR EVERYONE OF ALL AGES WITH CORTISOL DEFICIENCY

The very well attended meeting was hosted by Professor Peter Hindmarsh and the University College London Hospitals & Great Ormond Street Hospital CAH Parent and Patient Group in London on Saturday 14 June 2014. Members of the Pituitary Foundation, Addison's Group, Adrenoleukodystrophy Support Group and CAH Group attended. The report covers in detail cortisol replacement and explains how it should be carried out and monitored to achieve optimal replacement. There is factual scientifically accredited data on profiling and information on emergency care from the Ambulance Services as well as what to expect in Casualty. There is a detailed account on cortisol replacement, how the different steroid preparations work and the individual variation in the metabolism of glucocorticoids. We extended the section on profiling so that everyone who is cortisol deficient and having treatment can understand the principles of steroid dosing and how this is best monitored.

To read the Transcripts of the meeting please click on the link below.

TRANSCRIPT OF MEETING 14 JUNE 2014


*Our new series of Questions and Answers.

Disability Discrimination Law in Employment and Eduction

We often get queries about school policies and where CAH fits within what schools and workplaces need to provide. To help us with this we asked Catherine Casserly who is a law expert in discrimination and disability to help us and she came to talk to the Group in November. Catherine very kindly said we could put her presentation slides on our website. The slides tell us about what disability is defined as and there is no doubt that CAH fits the definition. She also told about the law and how schools and employers must comply with the components of the Equality Act 2010. What is just as important, is that if you are a carer then the Act covers you as well. So for example if you have to take time off work for your child say to come to hospital the employer cannot penalise you for this.

Have a look at the slides on the link below. Please note that this is not about claiming any type of disability benefit.

Discrimination Law in Employment and Eduction


Thanks to all who have e-mailed us questions over the months, we have started off by answering the questions on 24 hour profiling.Please click on the link below

Series One Q & A 24 Hour Profiles

*Our thanks to Jacqui Mayes, Nutritional Therapist for this very interesting and helpful article which can be viewed on the link below.

Blood sugar balance and foods that can affect this

Please note that any data/ information contained on this website cannot be copied or used in any way without the prior permission of the owner/ author Professor Peter Hindmarsh'