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Adrenal Hypoplasia Congenita



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The endocrine team at Great Ormond Street Hospital are working hard with patients and parents to improve the quality of care and services for all with Congenital Adrenal Hyperplasia.

CAH is a rare genetic disorder and the endocrine team at GOSH appreciate that patients and parents often feel alone in their journey in dealing with this complex disorder. To help and offer support as well as give both parents and older patients the chance to meet, exchange ideas and share experiences, our group CAH IS US was founded.

We are delighted that University College London Hospitals are in the process of extending their CAH and Adrenal Services up to the age of 25 years old. This unique service will be developed and led by Professor Peter Hindmarsh and will involve inpatient, day case and outpatients redesign.

Over the coming months we will be adapting and adding some of our leaflets and information to reflect this exciting new development! We will have a leaflets page specifically for UCLH patients. The letters and information will essentially be the same although the letterheads will change to reflect the new development and of course the relevant contact points will differ.

Do keep an eye on our site as things will change as we go through 2014 with this new exciting period.



Please note that any data/ information contained on this website cannot be copied or used in any way without the prior permission of the owner/ author Professor Peter Hindmarsh