CAH IS US
Welcome to our updated site which aims to provide the latest information on congenital adrenal hyperplasia and other conditions that lead to adrenal insufficiency for everyone.
We have lots of information available in the form of leaflets covering circadian dosing, using the pump method to replace cortisol and how hydrocortisone works as cortisol in the body.
Our articles together with helpful notes on what to do in illness as well as model letters which you can use in conjunction with your endocrinologist all help to make interactions with the Health Service smoother. The site also contains transcripts of past meetings which are a great source of reference material.
Our group was founded in 2010 and has grown beyond all our expectations and we are very encouraged by the incredible feedback with regards to our information and how it is helped many people all over the world as well as helped save lives.
The aim of the group is to bring together families and people with congenital adrenal hyperplasia and other forms of adrenal insufficiency and provide information that will help generate better care and knowledge.
All the information comes from state-of-the-art research. Professor Peter Hindmarsh who is the medical lead, was the first person in the world to devise a method which mimics the natural production of cortisol, the circadian rhythm, by devising a formula which slowly infuses cortisol at rates which are set to suit the individual's unique handling of cortisol. From this and his extensive research in cortisol in both adults and children he has gained in depth knowledge and we are grateful for his dedication and his work in all aspects of cortisol replacement. Over the years he has done hundreds of 24 hour profiles in a vast range of ages which has given him an immense insight in how to use glucocorticoids to replace cortisol.
We aim to hold meetings twice a year which have proved very popular with attendees flying in from Europe and others travelling from all over the UK, Scotland, Wales and Ireland. The meetings have brought many families together who have become firm friends and are a very valued integral part of our group.
All our leaflets are based on accredited factual scientific data. The views expressed are those of the authors and do not reflect their affiliations. Our goal is to provide good, sound educational information for everyone to read so they can make their own informed choices.
We always recommend that you discuss the information with your endocrinologist. We do not give clinical advice merely provide evidence based information.
|Please note that any data/ information contained on this website cannot be copied or used in any way without the prior permission of the owner/ author Professor Peter Hindmarsh|